I am having one of those days where I don't really know how I feel. I am in so much pain today, and the medication isn't helping at all. I have been waiting to find out if I am eligable for PIP benefits. Because I cannot work, I have no money and my family have been struggling with our money. I applied around 18 months ago, and I got rejected, they told me that I could still move around, but what they didn't understand was that I have tried to work, and because my illness is so unpredictable, I had more time off than I had working. I just wish they could spend a day in my shoes and see how hard it is to live my life. I just hope I hear something soon. Lets just keep our fingers crossed.
I went to London last weekend with my mum, and I had an amazing weekend, eveything was perfect, and in all honesty we walked quite a while, but we took loads of breaks and made sure we both weren't in too much pain. But Monday was one of the worst days pain wise I have ever had. I couldn't even get out of bed, and when I did I needed my husband to help me get dressed. This is the thing I hate about my illness. It won't even let me have one good day, without paying for it afterwards. Its almost like it won't let me live my life. Sometimes I feel like I should just stay in one place for the rest of my life. Part of me wants to live my life to the fullest, but I know that thats impossible.
i'm sorry this post is very doom and gloom, I just want to get all this off my chest, I hope it will make me feel a lot better. So i appologise in advance.
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